What is similar to Ehlers-Danlos Syndrome?
Marfan syndrome (MFS) and Ehlers-Danlos syndrome (EDS) are connective tissue disorders with multisystem manifestations. Joint hypermobility syndrome (JHS) is a connective tissue disorder that primarily affects the musculoskeletal system.
Can you have mild Ehlers-Danlos?
It can be mild and is probably often undiagnosed. However many people with hEDS have significant or even severe pain and disability. The main symptoms of hEDS are stretchy skin (which is not fragile but which may heal slowly) and unusually flexible joints. Many people with hEDS have tiredness, pain and mood changes.
Can a physical therapist diagnose Ehlers-Danlos Syndrome?
Physical therapy/physiotherapy is key to managing Joint Hypermobility Syndrome/Hypermobile Ehlers-Danlos syndrome (JHS/hEDS). However, many clinicians (including physical therapists) are not familiar with how this condition is diagnosed, the common signs and symptoms, or best treatment approaches.
At what age is EDS diagnosed?
The age at first diagnosis peaked in the age group 5–9 years for men and 15–19 years for women (see figure 2). There was a significant difference of 8.5 years in the mean age of diagnosis between men and women (95% CI: 7.70 to 9.22): 9.6 years in EDS (95% CI: 6.85 to 12.31) and 8.3 years in JHS (95% CI: 7.58 to 9.11).
Does EDS affect the eyes?
Ophthalmological abnormalities in EDS include but are not limited to myopia, retinal detachment and glaucoma. Some of these can be vision-threatening. An optometrist or ophthalmologist should establish a comprehensive baseline for a person with EDS, including a complete eye exam and history.
What does an EDS flare up feel like?
“A “flare up” with EDS for me is extreme pain with my joints, a low grade fever, and subluxations of my fingers and other joints. “Today you are actually witnessing one of the longest flares I’ve had since being diagnosed.
Is Ehlers Danlos an autoimmune disease?
A much rarer group of connective tissue disorders is called Ehlers-Danlos syndrome. Unlike the diseases noted above, Ehlers-Danlos syndrome is not an autoimmune condition, it’s an inherited disorder.
What are the best exercises for Ehlers Danlos syndrome?
Many patients with EDS can benefit from low-impact exercises such as Pilates and Tai Chi, which help build core strength. Yoga can also be beneficial but poses must be done carefully as there is the risk of overextending joints in some positions.
Could you have Ehlers Danlos syndrome?
Yes, but it is a syndrome that has a collection of different disorders. It is usually associated with hypermobile joints so to have ehlers danlos without that clinical finding is less likely. Possibly. With age hypermobility decreases, so someone previously diagnosed with hypermobility may fall below a diagnostic threshold later in life.
What are the different types of Ehlers-Danlos syndrome?
What are the types of Ehlers-Danlos syndromes? Classical type (formerly types I & II) Hypermobility type (formerly type III) Vascular type (formerly type IV, the arterial form) Kyphoscoliosis type (formerly type VI) Arthrochalsia type (formerly type VIIB, arthrochalasis multiplex congenita) Dermatosparaxis type (formerly type VIIC) Tenascin-X deficient type